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MY VAGINA, MY LIFE
Living life with Chronic Pelvic Pain + RGS (PGAD) + Interstitial Cystitis
Talking about dealing with it + What helped + how to get through it
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Lior
Dec 18, 20207 min read
[Fertility] Knowledge is Power
It was a Thursday, just about 9:15 AM. I was sitting in the waiting room for my name to be called, feeling hopeful and hopeless at the...
260 views0 comments
Lior
Dec 16, 202010 min read
Fertility Mind-Fuck
I pretty much remember the moment a switch went off in my head from being young, selfish, and newly-married to I want a baby. I remember...
123 views0 comments
Lior
Oct 16, 20203 min read
Chronic Pelvic Pain & Fertility Issues
I know this isn't something people generally talk about while trying, but I want to be as open and honest as possible. After years of...
224 views0 comments
Lior
Sep 18, 20201 min read
Medications: Gabapentin (Neurontin)
Gabapentin is used for nerve pain. Specifically, patients with RGS/PGAD use it to help with restless leg syndrome and other nerve pain....
520 views2 comments
Lior
Jul 28, 20204 min read
PGAD + Relationships
I met my husband by chance in 2012. He was visiting a mutual friend in NYC for a birthday. When we met I had not been diagnosed yet. The...
736 views0 comments
Lior
Jul 23, 20202 min read
Elmiron + Interstitial Cystitis + Side Effects
Those people currently taking Elmiron and are aware of the lawsuits going on can understand this title. For those not, let me explain....
113 views0 comments
Lior
Jul 5, 20205 min read
How To Be Happy When Feeling Pain
When Googling PGAD/RGS, a lot of negative comes up. When I told my mom what I thought I had (after months of feeling depressed) she...
401 views0 comments
Lior
Jul 1, 20206 min read
Possible Treatments
I have been getting a lot of messages regarding possible treatments. I decided to write out a list here of things I have personally tried...
803 views0 comments
Lior
Jun 5, 20203 min read
Dealing With Flare Ups
Just when you think you're doing good, something like Covid-19 hits. Just kidding. But in reality, there are going to be things in life...
416 views0 comments
Lior
May 9, 20204 min read
Surgery: Vestibulectomy
This is an interesting post, because it is the reason I decided to start a blog. After my Vestibulectomy, I was in so much pain and...
819 views1 comment
Lior
Apr 28, 20203 min read
How To Explain This To Others
In the beginning, it was just easier for me to tell people I had a bladder disorder. It was short, sweet and to the point. Even after my...
240 views0 comments
Lior
Apr 27, 20202 min read
Physical Therapy
I started physical therapy before I was "officially" diagnosed. After explaining to my mom I felt I had this disorder based on my...
266 views0 comments
Lior
Apr 25, 20203 min read
Traveling The World, Just Being Prepared
My #chronicpainwarriors, traveling is not impossible with these diagnosis. The year I was diagnosed, I graduated in May and I went on a...
94 views0 comments
Lior
Apr 22, 20203 min read
Sex Should Not Hurt
When I was diagnosed, I was not having sex (since I was focused on getting better). After 8 months of treatment, a guy I had a one-night...
211 views0 comments
Lior
Apr 22, 20203 min read
Where It All Began.
There is really no easy way to talk about chronic pelvic pain, RGS-Restless Genital Disorder (PGAD), and all that comes with it. I have...
361 views1 comment
Lior
Apr 22, 20202 min read
Tackling Things Head On.
Even thinking that maybe you have these symptoms is scary. Telling even one person you are feeling this way is humiliating. Or at least...
96 views0 comments
Lior
Apr 22, 20202 min read
Stop Calling It Arousal. Because it's NOT.
If you think the pain and discomfort is difficult, explaining it to people is just as hard. PGAD, or a better name for it, RGS does NOT...
195 views0 comments
Lior
Apr 22, 20205 min read
All The Symptoms Under The Sun
The thing about Chronic Pelvic Pain is that there are also so many other things that can come with it. It's an umbrella. You can feel all...
213 views0 comments
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